
What this means for families
Sophie's Story
Sophie was three when she stopped making urine. Her mother had driven two hours to the nearest children’s hospital. The team that finally saw her was excellent. But two hours is the difference between kidneys that recover and kidneys that don’t. Sophie’s didn’t fully recover. She is eight now and on the transplant list.
Zip code is a kidney disease risk factor. It shouldn’t be.
For families navigating a complex pediatric condition, the wait is not passive. It is a series of appointments that lead to more appointments, questions that lead to more questions, and a child who keeps waiting.




